The second week has been hard.
I am now getting 2 hour long treatments. This is to cut down my stay in Bradford to 4 weeks.
Monday was a very hard day as I found the 2 hours very uncomfortable because of sore legs. The wonderful therapists here in Bradford Royal Infirmary Pat and Liz were so helpful and reaassuring that I have been able to complete the week. On the monday they turned down the pressure of the cuff s to 260 for the first 2 afternoon treatments and then increased me to 300 at the end of week. 240 is the min and 300 the max and all these pressures are an effective treatment.
I have had a bit more chest pain and breatlessness this week but have stayed positive and today I have had quite a long walk and up a bit of a hill slowly. No pain just a small amount of breathlessness. Also we have driven to my stepdaughter Jenny's in South Leeds for lunch and I have not had to have a rest this afternoon.
I met Dr Morley on Tuesday and he told me I would get used to the 2 hours a day. I have 1 from 11 to 12 then light lunch then 1 to 2 for second treatment.
I have to mention and thank my GP Dr Wesley Rainey who referred me to DR Morley in Bradford after I had read that Dr Morley did EECP on the national health.
My Cardiologist in the RVH Belfast Dr G Dalzell who gave his support for the treatment.
Cathy goes home tomorrow. She has to get back to work. I will miss her so much but now that I feel better today she feels more confident leaving me. My sister and brother in law are visiting on Wednesday and I will look forward to seeing them. I am hoping to get home next weekend and fly back on Sunday for my last week.
John
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Jonny I have been reading your blog with a lot of interest as I am hoping to have EECP treatment at a clinic in the South of England, I am just waiting now to hear if my local health trust has approved the funding. Fingers crossed. I know each PCT has diferent budgets etc, but was interested to learn that your travel and accomodation was covered too.
ReplyDeleteI had an MI in 2002 and have been virtually crippled with prolonged angina ever since. I take morphine for the pain, which has helped me a bit with mobility as I too used to use a mobility scooter and or a wheelchair to get around. But it hasn't stopped the angina, so I am bedbound or housebound much of the time, especially in the Winter. I am praying that EECP will make a difference,and am glad to hear that its helping you.
Good luck with the rest of your treatment, I hope it continues to help you, and look forward to hearing how you get on.
Lynne
Hi Lynne
ReplyDeleteI am sorry to hear that you are sufferering so badly. I hope you hear very soon that you have the funding. Please keep ring ing your PCT or the Clinic to see how things are progressing and this will hurry things along.
The staff in Bradford were very suprised that my trust payed for travel and accommodation but this has been the case for Northern Ireland trusts for years. As you say it will depend on your PCT. I have been told that the Lions may be able to help with some funds so that would be worth a try. You can find a video of the treatment on YOUTUBE at
http://uk.youtube.com/watch?v=ZWKtqs2Lh60 and you could send me a private message.
I hope you hear soon and keep ringing.
John